Bill > HRes91

This Resolution expresses support for designating February 28, 2013, as Rare Disease Day, acknowledging that rare diseases affect small patient populations, with nearly 7,000 such conditions impacting 30 million Americans, many of whom are children and face serious, life-threatening illnesses with limited treatment options and diagnostic challenges. The resolution highlights the significance of the Orphan Drug Act, which has driven research and treatment progress, and notes that 2013 marks its 30th anniversary, a time for reflection on its successes and future needs. It also recognizes the efforts of government agencies like the Food and Drug Administration (FDA) and the National Institutes of Health (NIH) in advocating for rare disease research, as well as the crucial role of the National Organization for Rare Disorders (NORD) in sponsoring Rare Disease Day to raise public awareness and support a global commitment to improving access to and developing new treatments, diagnostics, and cures for these conditions.