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  • NJ A2860
  • Revises Newborn Screening program in DHSS.
Introduced
(2/16/2016)
In Committee
(2/16/2016)
Crossed OverPassedSignedDead/Failed/Vetoed
2016-2017 Regular Session
This bill revises the State's newborn screening program for congenital disorders by requiring the Commissioner of Health and Senior Services to annually review a list of disorders recommended by an advisory committee (established in the bill) to determine the disorders for which newborn infants will be screened by the department. The bill also makes several other changes to the program, including formally designating it as the "Newborn Screening" program. According to information from the March of Dimes and the CARES Foundation, Inc., the State is currently screening newborns for 50 disorders. This legislation ensures that the disorders included in the Newborn Screening program will be evaluated on a yearly basis and that the program will expand to include more disorders as technology and State resources allow. Specifically, the bill makes the following changes to the screening, follow-up, treatment, and education components of the Newborn Screening program: the commissioner is directed to establish a Newborn Screening Advisory Committee consisting of medical, hospital, and public health professionals, as well as scientific experts and consumer representatives, and convene a meeting of the committee at least once a year to make recommendations on the disorders screened for, screening technologies, treatment options, and educational and follow-up procedures; the commissioner is required to annually review a list of disorders promulgated by the advisory committee and to determine, based on the list, the disorders for which newborn infants will be screened; the commissioner, within 60 days of adding a new disorder to the program, must advise the President of the Senate and the Speaker of the General Assembly; the commissioner is required to provide timely intervention and referral to specialists and treatment centers for newborn infants with confirmed positive diagnoses of the disorders screened for pursuant to the bill; the commissioner is required to adopt regulations establishing qualifications for centers that receive grants to provide treatment for newborns that are diagnosed with certain disorders through the program, and to establish qualifications for medical personnel working at the centers; the commissioner is required to systematically collect data to track and monitor newborns and children with confirmed positive diagnoses of disorders screened for through the program until they reach 21 years of age, and evaluate the long-term outcomes of treatment; the educational program on newborn screening shall provide materials and information on follow-up, rehabilitative, medical, and early intervention services for newborn infants with confirmed positive diagnoses of disorders; the fee charged to hospitals by the department is increased from $71 to a minimum of $100, to support the screening, follow-up, and treatment of newborns, and the education of physicians, nurses, and the public; a portion of the fee charged to hospitals by the department is to be used for infrastructure upgrades, including providing electronic access to physicians to obtain screening results, follow-up recommendations, and information on the treatment provided by the Newborn Screening program; and parents of newborn infants are required to provide notice in writing if they object to screening on the grounds that it would conflict with their religious tenets or practices.
Women and Children
Introduced, Referred to Assembly Women and Children Committee  (on 2/16/2016)
 
 
Date Chamber Action Description
2/16/2016 A Introduced, Referred to Assembly Women and Children Committee
Date Motion Yea Nay Other
None specified