MA H1934

Bill

To create a Massachusetts rare disease advisory council

Introduced
01/22/2019

In Committee
01/22/2019

Crossed Over

Passed

Dead
12/31/2020

Introduced Session

191st General Court

Bill Summary

For legislation to create a Massachusetts rare disease advisory council. Public Health.

AI Summary

This bill establishes a Massachusetts Rare Disease Advisory Council to advise the state government on the incidence and status of rare diseases in the Commonwealth. The council will be composed of various stakeholders, including legislators, healthcare providers, patient advocates, and individuals affected by rare diseases. The council's key duties include analyzing the social and economic burden of rare diseases, evaluating the current system of rare disease treatment, and developing a comprehensive rare disease plan for the state. The bill also requires the council to report annually on its progress and any potential cost savings from implementing its recommendations.

Committee Categories

Health and Social Services

Sponsors (19)

Brian Ashe (D), Julian Cyr (D), Shawn Dooley (R), Kim Ferguson (R), Carole Fiola (D), Colleen Garry (D), Anne Gobi (D), Jonathan Hecht (D), Brad Jones (R), Hannah Kane (R), David LeBoeuf (D), Joe McKenna (R), Paul McMurtry (D), Mike Moore (D), Matt Muratore (R), Elizabeth Poirier (R), Dave Rogers (D), Paul Schmid (D), Timothy Whelan (R),

Last Action

Accompanied a new draft, see H4268 (on 12/26/2019)

Official Document

https://malegislature.gov/Bills/191/H1934

(12 Companion Bills)

Version:

Document Type	Source Location
State Bill Page	https://malegislature.gov/Bills/191/H1934
Bill	https://malegislature.gov/Bills/191/H1934.pdf

Bill	Bill Name	Last Action	Type
H1661	Relative to job creation through employee ownership	Read second and ordered to a third reading	Similar To
H1719	Relative to creating intensive stabilization and treatment units within the Department of Mental Health	Accompanied S1153	Similar To
H1758	Relative to further increasing the fines for cruelty to animals, and establishing a fund dedicated to improvements for local animal shelters	Accompanied a new draft, see S2760	Similar To
H2776	Resolve providing for the creation of a special commission relative to the seal and motto of the Commonwealth	Accompanied S1877	Similar To
H2941	To establish a Massachusetts public arts program	Bill reported favorably by committee and referred to the committee on House Ways and Means	Similar To
H2945	Relative to the position of poet laureate for the Commonwealth of Massachusetts	Discharged to the committee on House Rules	Similar To
H4076	Establishing a women's rights history trail	Read; and referred to the committee on Senate Ways and Means	Similar To
H4268	To create a Massachusetts rare disease advisory council	Committee recommended ought to pass and referred to the committee on House Ways and Means	Replaced by
S2134	Resolve relative to a special VFW Parkway master plan commission	Discharged to the committee on Senate Rules	Similar To
S2309	To create a Merrimack River District Commission	Read; and referred to the committee on House Ways and Means	Similar To
S637	Relative to interstate branching of a credit union and the Massachusetts Credit Union Share Insurance Corporation	Accompanied a study order, see S2543	Similar To
S806	Creating the Home Works Program	Bill reported favorably by committee and referred to the committee on Senate Ways and Means	Similar To

Bill

Bill Name

Last Action

Type

H1661

Relative to job creation through employee ownership

Read second and ordered to a third reading

Similar To

H1719

Relative to creating intensive stabilization and treatment units within the Department of Mental Health

Accompanied S1153

Similar To

H1758

Relative to further increasing the fines for cruelty to animals, and establishing a fund dedicated to improvements for local animal shelters

Accompanied a new draft, see S2760

Similar To

H2776

Resolve providing for the creation of a special commission relative to the seal and motto of the Commonwealth

Accompanied S1877

Similar To

H2941

To establish a Massachusetts public arts program

Bill reported favorably by committee and referred to the committee on House Ways and Means

Similar To

H2945

Relative to the position of poet laureate for the Commonwealth of Massachusetts

Discharged to the committee on House Rules

Similar To

H4076

Establishing a women's rights history trail

Read; and referred to the committee on Senate Ways and Means

Similar To

H4268

To create a Massachusetts rare disease advisory council

Committee recommended ought to pass and referred to the committee on House Ways and Means

Replaced by

S2134

Resolve relative to a special VFW Parkway master plan commission

Discharged to the committee on Senate Rules

Similar To

S2309

To create a Merrimack River District Commission

Read; and referred to the committee on House Ways and Means

Similar To

S637

Relative to interstate branching of a credit union and the Massachusetts Credit Union Share Insurance Corporation

Accompanied a study order, see S2543

Similar To

S806

Creating the Home Works Program

Bill reported favorably by committee and referred to the committee on Senate Ways and Means

Similar To

Bill > H1934

MA H1934

summary

Introduced Session

Bill Summary

AI Summary

Committee Categories

Sponsors (19)

Last Action

Official Document

bill text

bill summary

bill summary

bill summary