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Bill > H2666


MA H2666

Designating the last day of February as rare disease day in the Commonwealth


summary

Introduced
01/22/2019
In Committee
07/25/2019
Crossed Over
Passed
Dead
12/31/2020

Introduced Session

191st General Court

Bill Summary

By Mr. Ashe of Longmeadow, a petition of Brian M. Ashe and others for the annual issuance of a proclamation by the Governor designating the last day of February as rare disease day. State Administration and Regulatory Oversight.

AI Summary

This bill amends Chapter 6 of the General Laws to require the governor of Massachusetts to annually issue a proclamation designating the last day of February as Rare Disease Day. The proclamation would recommend that the public observe the day to increase awareness of rare diseases, which affect millions of Americans and present unique challenges for patients, their families, and the medical professionals, researchers, and educators who serve the rare disease community.

Committee Categories

Government Affairs

Sponsors (20)

Last Action

Committee reported that the matter be placed in the Orders of the Day for the next sitting for a second reading (on 09/16/2019)

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