Bill
Bill > H2666
MA H2666
Designating the last day of February as rare disease day in the Commonwealth
summary
Introduced
01/22/2019
01/22/2019
In Committee
07/25/2019
07/25/2019
Crossed Over
Passed
Dead
12/31/2020
12/31/2020
Introduced Session
191st General Court
Bill Summary
By Mr. Ashe of Longmeadow, a petition of Brian M. Ashe and others for the annual issuance of a proclamation by the Governor designating the last day of February as rare disease day. State Administration and Regulatory Oversight.
AI Summary
This bill amends Chapter 6 of the General Laws to require the governor of Massachusetts to annually issue a proclamation designating the last day of February as Rare Disease Day. The proclamation would recommend that the public observe the day to increase awareness of rare diseases, which affect millions of Americans and present unique challenges for patients, their families, and the medical professionals, researchers, and educators who serve the rare disease community.
Committee Categories
Government Affairs
Sponsors (20)
Brian Ashe (D),
Josh Cutler (D),
Colleen Garry (D),
Anne Gobi (D),
Kate Hogan (D),
Steven Howitt (R),
Louis Kafka (D),
Hannah Kane (R),
Patrick Kearney (D),
Eric Lesser (D),
David Linsky (D),
Joe McKenna (R),
Paul McMurtry (D),
Mike Moore (D),
Matt Muratore (R),
Patrick O'Connor (R),
Angelo Puppolo (D),
John Rogers (D),
Mike Soter (R),
Bud Williams (D),
Last Action
Committee reported that the matter be placed in the Orders of the Day for the next sitting for a second reading (on 09/16/2019)
Official Document
bill text
bill summary
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bill summary
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bill summary
Document Type | Source Location |
---|---|
State Bill Page | https://malegislature.gov/Bills/191/H2666 |
Bill | https://malegislature.gov/Bills/191/H2666.pdf |
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