Bill > S1245

This bill establishes a Parkinson's disease registry in Massachusetts. It requires the Department of Public Health to collect data on the incidence of Parkinson's disease in the state. All patients diagnosed with Parkinson's disease must be provided written and oral notice about the registry, and patients who wish to participate must affirmatively consent in writing. The bill mandates that all Parkinson's disease cases diagnosed or treated in Massachusetts be reported to the department, though patients who choose not to participate will only have their disease incidence reported without further data collection. The department is required to maintain the confidentiality of the collected information and can only disclose it to authorized entities for research purposes. The bill sets an effective date of January 1, 2020 for the data collection and July 1, 2020 for the public notification requirement.

Health and Social Services

https://malegislature.gov/Bills/191/S1245