Bill > HR5989

This bill, the Precision Medicine Answers for Kids Today Act, aims to expand access to genetic and genomic testing for certain children eligible for Medicaid. The key provisions include: 1. Requiring the Centers for Medicare & Medicaid Services (CMS) to issue guidance to states on covering medically necessary genetic and genomic testing for children, regardless of whether the services are available for adults. 2. Establishing a 3-year demonstration program where up to 15 states can test and evaluate the provision of Medicaid coverage for genetic and genomic testing for eligible children. 3. Directing the National Academy of Medicine to study how genetic and genomic testing can improve preventative care, reduce disparities, and be better integrated into the Medicare and Medicaid programs. 4. Requiring CMS to submit annual reports on the extent to which states provide Medicaid coverage for various genetic and genomic tests, including information on utilization, denials, and barriers to coverage. The overall goal is to increase access to these advanced diagnostic tools for children, particularly those with suspected genetic or undiagnosed diseases, in order to improve health outcomes and reduce disparities.

Business and Industry, Health and Social Services

https://www.congress.gov/bill/117th-congress/house-bill/5989/all-info