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Bill > HB2283
PA HB2283
PA HB2283Providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities; and providing for powers and duties of the Office of Attorney General.
summary
Introduced
01/26/2022
01/26/2022
In Committee
01/26/2022
01/26/2022
Crossed Over
Passed
Dead
11/30/2022
11/30/2022
Introduced Session
2021-2022 Regular Session
Bill Summary
Providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities; and providing for powers and duties of the Office of Attorney General.
AI Summary
This bill, titled the "Genetic Materials Privacy and Compensation Act," aims to provide privacy, transparency, and compensation regarding the disclosure of information collected by genetic material testing entities. The key provisions include:
1. Requiring genetic material testing entities to prominently disclose the type of genetic material collected, the purpose of data sharing, and any data-sharing agreements with law enforcement agencies, and obtain the individual's affirmative express consent before collecting or sharing their genetic material.
2. Prohibiting genetic material testing entities or third parties from selling or donating an individual's genetic material without their express authorization, and requiring them to provide fair and adequate compensation (at least 90% of the amount received) for the use of an individual's genetic material.
3. Mandating genetic material testing entities or third parties to establish and maintain a comprehensive privacy program to address privacy risks and protect the privacy and confidentiality of the collected genetic material.
4. Recognizing individuals' inherent ownership rights and privacy interest in their genetic material, even when voluntarily provided to a for-profit company.
5. Designating violations of the act as "unfair methods of competition" and "unfair or deceptive acts or practices" under the Unfair Trade Practices and Consumer Protection Law, subject to enforcement and remedies.
Committee Categories
Business and Industry
Sponsors (18)
Emily Kinkead (D)*,
Matt Bradford (D),
Danilo Burgos (D),
Joe Ciresi (D),
Dave Delloso (D),
Anthony DeLuca (D),
Russ Diamond (R),
Carol Hill-Evans (D),
Mary Isaacson (D),
Stephen Kinsey (D),
Maureen Madden (D),
Napoleon Nelson (D),
Mark Rozzi (D),
Ben Sanchez (D),
Mike Schlossberg (D),
Melissa Shusterman (D),
Mike Sturla (D),
Michael Zabel (D),
Last Action
Referred to CONSUMER AFFAIRS (on 01/26/2022)
bill text
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bill summary
| Document Type | Source Location | Created |
|---|---|---|
| State Bill Page | https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2021&sind=0&body=H&type=B&bn=2283 | 01/25/2022 |
| Bill | https://www.legis.state.pa.us/cfdocs/legis/PN/Public/btCheck.cfm?txtType=PDF&sessYr=2021&sessInd=0&billBody=H&billTyp=B&billNbr=2283&pn=2665 | 01/26/2022 |
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