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Bill > HB2283


PA HB2283

PA HB2283
Providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities; and providing for powers and duties of the Office of Attorney General.


summary

Introduced
01/26/2022
In Committee
01/26/2022
Crossed Over
Passed
Dead
11/30/2022

Introduced Session

2021-2022 Regular Session

Bill Summary

Providing for privacy, transparency and compensation regarding the disclosure of information collected by genetic material testing entities; and providing for powers and duties of the Office of Attorney General.

AI Summary

This bill, titled the "Genetic Materials Privacy and Compensation Act," aims to provide privacy, transparency, and compensation regarding the disclosure of information collected by genetic material testing entities. The key provisions include: 1. Requiring genetic material testing entities to prominently disclose the type of genetic material collected, the purpose of data sharing, and any data-sharing agreements with law enforcement agencies, and obtain the individual's affirmative express consent before collecting or sharing their genetic material. 2. Prohibiting genetic material testing entities or third parties from selling or donating an individual's genetic material without their express authorization, and requiring them to provide fair and adequate compensation (at least 90% of the amount received) for the use of an individual's genetic material. 3. Mandating genetic material testing entities or third parties to establish and maintain a comprehensive privacy program to address privacy risks and protect the privacy and confidentiality of the collected genetic material. 4. Recognizing individuals' inherent ownership rights and privacy interest in their genetic material, even when voluntarily provided to a for-profit company. 5. Designating violations of the act as "unfair methods of competition" and "unfair or deceptive acts or practices" under the Unfair Trade Practices and Consumer Protection Law, subject to enforcement and remedies.

Committee Categories

Business and Industry

Sponsors (18)

Last Action

Referred to CONSUMER AFFAIRS (on 01/26/2022)

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