Bill > HR8855

This bill establishes a program to address sickle cell disease and other heritable hemoglobinopathies. It creates "Sickle Cell Disease Treatment Centers" that use a hub-and-spoke framework to promote access to coordinated healthcare, provide support for integrated care teams, improve patient health and well-being, increase reporting on quality measures, and conduct public health activities. The bill defines key terms like "community-based organization," "eligible entity," and "hub-and-spoke network." It outlines how grant funds can be used by medical hubs, community-based organizations, and spokes. The bill also establishes a National Sickle Cell Disease Coordinating Center to coordinate the activities of the Treatment Centers and a data collection program at the Centers for Disease Control and Prevention. The bill authorizes $535 million annually to carry out these provisions.

Business and Industry, Health and Social Services

https://www.congress.gov/bill/117th-congress/house-bill/8855/all-info