Bill > HB2440

This bill aims to protect the genetic privacy rights of newborn infants in West Virginia. It requires the express written consent of a parent or guardian before conducting any newborn genetic screening, retaining blood samples, or retaining and sharing the results of such screenings. The bill also limits the amount of blood that can be drawn for screening purposes and requires separate written consent for the retention and use of blood samples or screening results for any other purposes beyond the initial screening. The key provisions of the bill are the requirement for parental consent before screening, limiting the amount of blood drawn, and requiring additional consent for the retention and use of samples or results.