Bill > S1344

This bill aims to improve outcomes for individuals with Parkinson's disease by establishing a Parkinson's disease registry in Massachusetts. The key provisions include: 1. Defining "Parkinson's disease" and related "Parkinsonisms" conditions, and requiring the state Department of Public Health to establish a Parkinson's disease registry to collect information on the incidence and prevalence of these conditions. 2. Creating a Parkinson's disease registry advisory committee to provide recommendations on data collection, privacy, and implementation of the registry. 3. Requiring mandatory reporting of Parkinson's disease and Parkinsonisms cases to the registry, while allowing patients to opt-out of further data collection. 4. Authorizing the Department to enter into data-sharing agreements with other entities for research purposes, while ensuring patient confidentiality. 5. Requiring the Department to report annually to the state legislature on the registry's progress and findings, as well as maintaining a public-facing webpage with information about the registry. The overall goal of the bill is to improve understanding and treatment of Parkinson's disease and related conditions in Massachusetts.

Health and Social Services

https://malegislature.gov/Bills/193/S1344