summary
Introduced
02/16/2023
02/16/2023
In Committee
02/16/2023
02/16/2023
Crossed Over
Passed
Dead
12/31/2024
12/31/2024
Introduced Session
193rd General Court
Bill Summary
For legislation relative to LSDs (Lysosomal Storage Disorders) in infants. Public Health.
AI Summary
This bill aims to expand the list of Lysosomal Storage Disorders (LSDs) that must be included in mandatory newborn screening tests in Massachusetts. Specifically, the bill proposes to add Krabbe, Fabry, Gaucher, Pompe, MPS I, and Niemann Pick A/B diseases to the existing list, which currently includes only cretinism. By requiring screening for these additional disorders, the bill aims to improve early detection and treatment of these rare genetic conditions in infants.
Committee Categories
Health and Social Services
Sponsors (9)
Ryan Fattman (R)*,
Brian Ashe (D),
Jo Comerford (D),
John Keenan (D),
Mike Moore (D),
Patrick O'Connor (R),
Jake Oliveira (D),
Steve Owens (D),
Bruce Tarr (R),
Last Action
Accompanied a study order, see S2648 (on 02/15/2024)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://malegislature.gov/Bills/193/S1366 |
| BillText | https://malegislature.gov/Bills/193/S1366.pdf |
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