Bill > H1161

This bill aims to improve sickle cell disease care in Massachusetts. Key provisions include: 1. Requiring MassHealth (Medicaid) to provide coverage for standard fertility preservation services for individuals diagnosed with sickle cell disease or other conditions that may cause infertility from medical treatment. 2. Establishing a Statewide Steering Committee on Sickle Cell Disease to coordinate care, develop educational materials, and make recommendations on improving access to services. 3. Creating a Sickle Cell Disease Detection and Education Program to promote screening, detection, and public education on sickle cell disease, and provide grants to organizations for these services. 4. Requiring the establishment and maintenance of a sickle cell disease registry to collect comprehensive data on individuals with sickle cell disease or the sickle cell trait. 5. Directing the MassHealth program to ensure accessible, quality care for individuals with sickle cell disease, including requiring managed care organizations to implement sickle cell disease quality strategies and report performance metrics. Overall, the bill aims to improve access to care, education, data collection, and quality of services for individuals with sickle cell disease in Massachusetts.