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Bill > H4070


MA H4070

MA H4070
Designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day


summary

Introduced
04/13/2023
In Committee
10/31/2024
Crossed Over
10/30/2024
Passed
Dead
12/31/2024

Introduced Session

193rd General Court

Bill Summary

By Representative Kassner of Hamilton and Senator Tarr, a joint petition (subject to Joint Rule 12) of Kristin E. Kassner, Bruce E. Tarr and others for the issuance of an annual proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental Syndrome awareness day. State Administration and Regulatory Oversight.

AI Summary

This bill proposes to designate April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day in Massachusetts. OCNDS is a rare genetic disorder caused by mutations in the CSNK2A1 gene, which can lead to developmental delays and differences in brain function. The bill requires the Governor to annually issue a proclamation to raise awareness of OCNDS and encourage the people to observe the day in an appropriate manner.

Committee Categories

Government Affairs

Sponsors (5)

Last Action

No further action taken (on 12/31/2024)

bill text


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bill summary

Document Type Source Location
State Bill Page https://malegislature.gov/Bills/193/H4070
BillText https://malegislature.gov/Bills/193/H4070.pdf
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