summary
Introduced
02/01/2024
02/01/2024
In Committee
02/01/2024
02/01/2024
Crossed Over
Passed
Dead
01/12/2026
01/12/2026
Introduced Session
2024-2025 Regular Session
Bill Summary
This resolution designates July 22 of each year as "Fragile X Awareness Day." Fragile X-associated Disorders (FXD) is a family of three conditions caused by changes in the gene FMR1. Although FXDs can occur in males and females, because the disorder is related to the X chromosome, males are generally more severely affected. Fragile X Syndrome is a full mutation of FMR1, and is characterized by developmental delays, hyperactive or impulsive behavior, hand clapping or hand biting, intellectual disability, speech and language delay and a tendency to avoid eye contact. It is the most common form of inherited intellectual disability in males, and is the most common known genetic cause of autism. Fragile X-associated tremor/ataxia syndrome (FXTAS), a disorder caused by a FMR1 gene premutation, usually occurs after the age of 50. Characteristic features of FXTAS are intention tremor, which is the trembling of a limb when trying to perform a voluntary movement, and problems with coordination and balance, and the disorder is progressive over time. Fragile X-associated primary ovarian insufficiency (FXPOI), is characterized by absent or irregular menstrual periods, symptoms of menopause (such as hot flashes), early menopause and infertility. Although the gene mutation of FMR1 causing these disorders is known, there is no known cure for any of these conditions. Research is needed to develop superior treatment options, as well as potential cures and prevention. It is the sponsor's hope that the designation of July 22 as "Fragile X Awareness Day" raises awareness of these genetic disorders.
AI Summary
This joint resolution designates July 22 of each year as "Fragile X Awareness Day" to promote understanding of Fragile X-associated Disorders (FXD), a group of genetic conditions caused by mutations in the FMR1 gene. The resolution highlights that approximately one million Americans carry the Fragile X mutation, with the disorder affecting males more severely due to their single X chromosome. The three main conditions associated with FXD are Fragile X Syndrome (the most common inherited intellectual disability in males and a leading genetic cause of autism), Fragile X-associated tremor/ataxia syndrome (FXTAS, a late-onset movement disorder typically occurring after age 50), and Fragile X-associated primary ovarian insufficiency (FXPOI, which can cause fertility and menstrual issues in women). While currently there is no cure for these conditions, the resolution aims to raise awareness and potentially encourage further research and treatment development. The resolution calls for the Governor to issue an annual proclamation and invites public officials and citizens to observe the day with appropriate programs and activities, with the ultimate goal of improving diagnosis, treatment, and scientific understanding of these genetic disorders.
Committee Categories
Health and Social Services
Sponsors (1)
Last Action
Introduced, Referred to Assembly Health Committee (on 02/01/2024)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.njleg.state.nj.us/bill-search/2024/AJR99 |
| BillText | https://pub.njleg.gov/Bills/2024/AJR/99_I1.HTM |
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