Bill > S5097

This bill, the Sickle Cell Disease Comprehensive Care Act, aims to amend the Social Security Act to establish a demonstration project that would enable state Medicaid programs to provide care through health homes specifically for individuals with sickle cell disease. The key provisions include allowing states to provide health home services to eligible individuals with sickle cell disease starting in 2025, requiring states to ensure the provision of dental and vision services to these individuals, and requiring states with such a program to submit reports on the quality of care, access to care, and total healthcare expenditures for the eligible individuals. The bill also directs the Secretary of Health and Human Services to make publicly available best practices for designing and implementing these sickle cell disease-focused state plan amendments.