Bill > S4030

This bill requires health care professionals in New Jersey to confidentially report cases of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) to the New Jersey State Health Assessment Data System within six months of diagnosis. The bill defines ALS as a progressive neurodegenerative disease affecting nerve cells in the brain and spinal cord, and expands the definition of motor neuron disease to include several related conditions such as progressive bulbar palsy and spinal muscular atrophy. Health care professionals must report these cases while protecting patient and professional confidentiality, and the Department of Health may share the collected data with federal agencies, local health officers, and researchers studying ALS and MND for public health and research purposes. The bill mandates that the department develop and publish online educational materials about the data system, including information on accessing datasets and statistics related to ALS and MND. The Department of Health, in consultation with the Public Health Council, will develop necessary rules and regulations to implement the act, which takes effect immediately upon enactment.

Budget and Finance, Health and Social Services

https://www.njleg.state.nj.us/bill-search/2024/S4030