Bill > J00098

This resolution commemorates the 33rd Anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day in New York State, drawing attention to a serious long-term illness that affects multiple body systems and impacts millions of Americans. The resolution highlights that ME/CFS causes extreme fatigue, post-exertional malaise, sleep problems, cognitive difficulties, and pain, with approximately 150,000 people affected in New York State alone. It emphasizes the significant challenges faced by patients, noting that 25% are housebound or bedbound, 75-85% cannot work, and many students cannot attend school. The resolution points out the lack of medical understanding and research funding, as noted by the National Academy of Medicine, which has led to patients struggling to receive proper diagnosis and care. By commemorating this awareness day on May 12th, the legislative body aims to raise awareness about the disease, support patients and their families, and encourage more research and understanding of this debilitating condition that imposes a severe toll on those affected and the broader economy.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J98