Bill > S01578

This bill establishes the "Sickle Cell Treatment Act" which creates two key programs to support sickle cell disease care and research in New York State. First, the bill directs the state health commissioner to designate five hospitals north of Putnam and Orange counties as "centers for sickle cell care excellence", which will provide specialized sickle cell disease care, treatment, palliative care, education, and research. These centers will receive $500,000 annually for research and are required to collaborate with medical colleges and research institutes. Second, the bill mandates the designation of ten hospitals as "sickle cell outpatient treatment centers" based on patient population concentrations, with each center receiving $250,000 annually to ensure proper management and equipment for patient care. The bill also modifies existing opioid prescription guidelines to explicitly exempt patients with sickle cell disease from certain restrictions, recognizing the unique pain management needs of individuals with this chronic condition. The changes will take effect immediately upon passage.

Budget and Finance, Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/S1578