Bill > HB2595

This bill establishes a comprehensive Parkinson's disease registry in Oregon to track the incidence and prevalence of Parkinson's disease and related conditions called parkinsonisms. The Oregon Health Authority will create a registry system requiring health care facilities, licensed practitioners, and clinical laboratories to report diagnosed cases of Parkinson's disease and related conditions. A specialized advisory committee will be formed, including diverse members such as neurologists, patients, researchers, and public health experts, to guide the registry's development and implementation. The bill ensures patient privacy by making all identifying information confidential and allowing patients to opt out of data collection, with only basic diagnostic information being recorded for those who choose not to fully participate. The registry aims to support research by allowing third-party researchers to access anonymized data through an approved institutional review process. Healthcare providers who report data in good faith are protected from legal action or professional disciplinary consequences. The registry system is set to become operational on January 1, 2026, with the advisory committee appointed by the same date and the full reporting system functional by July 1, 2026. The bill also provides definitions for key terms like Parkinson's disease and parkinsonisms, emphasizing the neurological nature of these conditions and their progressive characteristics.

Health and Social Services

https://olis.oregonlegislature.gov/liz/2025R1/Measures/Overview/HB2595