Bill > SB00562

This bill proposes to amend section 19a-6t of Connecticut's general statutes to expand the Connecticut Rare Disease Advisory Council's ability to collaborate with and accept funding from nonprofit organizations. The bill would provide the council with more flexibility in securing additional financial resources and partnership opportunities from non-governmental entities. By allowing the council to accept funds from nonprofits, the legislation aims to potentially enhance the council's capacity to support and research rare diseases in Connecticut. The bill appears to be a relatively straightforward modification to existing law that would give the advisory council more operational autonomy in seeking external financial support and collaborative relationships with nonprofit organizations that may have interests aligned with rare disease research, awareness, or patient support.

Health and Social Services

https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00562&which_year=2025