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Bill > HB4016

MI HB4016

MI HB4016
Holidays: other; "Huntington's Disease Awareness Month"; designate as the month of May of each year. Creates new act.

summary

Introduced
01/14/2025
In Committee
01/14/2025
Crossed Over
Passed
Dead

Introduced Session

103rd Legislature

Bill Summary

A bill to recognize the month of May of each year as Huntington's Disease Awareness Month.

AI Summary

This bill designates May as "Huntington's Disease Awareness Month" in Michigan, acknowledging the significant challenges posed by this progressive neurological disorder. The legislation provides extensive context about Huntington's disease, highlighting that it affects over 41,000 Americans, with another 200,000 at genetic risk. Each child of a parent with the disease has a 50% chance of inheriting the gene, and the disease typically emerges between ages 30 and 50, though it can occur in children as young as 2. The bill emphasizes the disease's devastating impact, noting that the average lifespan after onset is 10 to 20 years, with juvenile cases rarely resulting in the child reaching adulthood. Recognizing the complexity of the disease, which can present symptoms similar to Alzheimer's, Parkinson's, and other neurological conditions, the legislature aims to raise awareness and support ongoing research. Since the gene causing Huntington's disease was discovered in 1993, scientific research has accelerated, though currently no effective treatment or cure exists. The bill symbolically associates adult onset Huntington's disease with the color blue and juvenile onset with purple, further drawing attention to this critical health issue and encouraging public understanding of the disease.

Committee Categories

Government Affairs

Sponsors (54)

Erin Byrnes (D)*,  Joey Andrews (D),  Noah Arbit (D),  Timmy Beson (R),  Kelly Breen (D),  Julie Brixie (D),  Brenda Carter (D),  Tyrone Carter (D),  Betsy Coffia (D),  Jennifer Conlin (D),  Jim DeSana (R),  Emily Dievendorf (D),  Kimberly Edwards (D),  Alabas Farhat (D),  Morgan Foreman (D),  Steve Frisbie (R),  Carol Glanville (D),  Kristian Grant (D),  Jaime Greene (R),  Peter Herzberg (D),  Kara Hope (D),  Jason Hoskins (D),  Matt Koleszar (D),  Tom Kunse (R),  Tullio Liberati (D),  Matt Longjohn (D),  Sharon MacDonell (D),  Jaz Martus (D),  Mike McFall (D),  Donavan McKinney (D),  Denise Mentzer (D),  Reggie Miller (D),  Jason Morgan (D),  Tonya Myers Phillips (D),  Cynthia Neeley (D),  Jerry Neyer (R),  Amos O'Neal (D),  Veronica Paiz (D),  Laurie Pohutsky (D),  Natalie Price (D),  Carrie Rheingans (D),  Julie Rogers (D),  Helena Scott (D),  Brad Slagh (R),  Will Snyder (D),  Samantha Steckloff (D),  Penelope Tsernoglou (D),  Dylan Wegela (D),  Regina Weiss (D),  Jimmie Wilson (D),  Stephen Wooden (D),  Doug Wozniak (R),  Mai Xiong (D),  Stephanie Young (D), 

Last Action

Bill Electronically Reproduced 01/14/2025 (on 01/15/2025)

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