Bill > HR0033

This resolution declares August 2025 as Spinal Muscular Atrophy (SMA) Awareness Month in Illinois, aiming to raise public understanding about this rare genetic neuromuscular disease. The resolution highlights that SMA is a degenerative condition affecting approximately one in 11,000 babies, which prevents motor-control neurons from sending signals to muscles, leading to muscle wasting and loss of control. While there are four types of SMA with varying severity—some potentially requiring ventilators and feeding tubes—the resolution emphasizes that individuals with SMA typically have normally developed brains and are cognitively bright. By designating an awareness month, the Illinois House of Representatives seeks to increase knowledge about the disease, support ongoing research into potential treatments or cures, and provide community support for families affected by SMA. The resolution also notes that unlike many rare neuromuscular diseases, SMA has a clear understanding of its specific genetic cause, which offers hope for future medical advances.

Health and Social Services

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=33&GAID=18&DocTypeID=HR&SessionID=114&GA=104