Bill > J00221

This resolution memorializes Governor Kathy Hochul to officially proclaim February 2025 as Marfan Syndrome Awareness Month in New York State, highlighting the significance of raising awareness about this rare genetic condition. The resolution provides context about Marfan syndrome, explaining that it is a potentially life-threatening disorder affecting multiple body systems, including the heart, blood vessels, connective tissues, eyes, bones, and joints, with a particularly dangerous impact on the aorta that makes it 250 times more likely to tear or rupture compared to the general population. The document notes that Marfan syndrome affects approximately one in 5,000 to 10,000 people in the United States, with an estimated half of those affected remaining undiagnosed, and emphasizes the critical importance of early detection and treatment. The resolution also recognizes the Marfan Foundation's mission to save lives, improve quality of life, fund research, provide education and support, and advocates for supporting individuals with this condition. By passing this resolution, the legislative body aims to increase public understanding, support medical research, and honor the community members, advocates, and healthcare providers working to improve outcomes for those living with Marfan syndrome.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J221