summary
Introduced
01/21/2025
01/21/2025
In Committee
04/03/2025
04/03/2025
Crossed Over
02/12/2025
02/12/2025
Passed
04/11/2025
04/11/2025
Dead
Signed/Enacted/Adopted
05/06/2025
05/06/2025
Introduced Session
2025 Regular Session
Bill Summary
Consumer genetic testing providers. Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.
AI Summary
This bill establishes comprehensive legal protections for individuals using consumer genetic testing services in Indiana. The legislation defines consumer genetic testing as a service where a company allows individuals to submit biological samples, performs genetic testing, and returns results directly to the individual. The bill prohibits discrimination against individuals based on their use of genetic testing services or test results, preventing businesses from denying services, charging different rates, or suggesting potential discriminatory actions. Consumer genetic testing providers must obtain explicit, informed consent from individuals before performing additional testing, using biological materials for other purposes, sharing data, or retaining materials beyond 30 days. The providers are required to implement robust security measures, protect individual privacy, and provide clear disclosure about how genetic data will be collected, stored, and potentially shared. Critically, the bill strictly prohibits providers from sharing individual genetic data with insurers, employers, or risk assessment businesses, regardless of consent. The attorney general has exclusive enforcement authority, with the ability to seek injunctions and impose civil penalties up to $7,500 per violation, and providers are given an opportunity to cure potential violations before formal legal action. This legislation aims to protect individuals' genetic privacy and prevent potential misuse of sensitive genetic information.
Committee Categories
Business and Industry
Sponsors (9)
Kyle Pierce (R)*,
Brian Buchanan (R),
Matthew Commons (R),
J.D. Ford (D),
Andrea Hunley (D),
Tyler Johnson (R),
Eric Koch (R),
Bob Morris (R),
Mark Spencer (D),
Last Action
Public Law 233 (on 05/06/2025)
Official Document
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