Bill > A02384

This bill requires insurers to provide coverage for medically necessary treatments for rare diseases, life-threatening conditions, degenerative and disabling conditions, or conditions involving medically fragile children, allowing patients to choose their provider without being restricted to a plan network, provided certain conditions are met. These conditions include that the cost of the chosen provider is comparable to a local network provider with similar expertise, the patient's doctor recommends the chosen provider, and advance notice is given to the insurance plan. The chosen provider must also have demonstrated expertise in treating the specific condition, though they don't need to be in the patient's network or located within the state, and the bill clarifies that travel costs are not covered. The bill defines "rare disease," "life-threatening condition or disease," "degenerative and disabling condition," and "medically fragile child" by referencing existing definitions in the public health law and social services law.

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https://www.nysenate.gov/legislation/bills/2025/A2384