Bill > HJR499

This joint resolution designates February 28, 2025, and each subsequent year as Krabbe Disease Awareness Day in Virginia, recognizing a rare and serious genetic disorder that affects approximately one in 250,000 live births. The resolution highlights the severity of Krabbe Disease, a lysosomal storage disorder with a mortality rate of up to 90 percent in the first two years of life, and notes the devastating complications patients experience, including deafness, vision loss, rigid posture, and cognitive deterioration. By establishing this awareness day, the Virginia General Assembly aims to draw attention to the need for more medical research and understanding of the disease. The resolution also requires the Clerk of the House of Delegates to post the day's designation on the General Assembly's website, helping to increase public knowledge about this rare and life-threatening condition.

https://lis.virginia.gov/bill-details/20251/HJ499