Bill > SB00801

This bill proposes to expand the Katie Beckett waiver program by adding fifty new program slots for children with severe, debilitating illnesses or conditions. The Katie Beckett waiver is a Medicaid program designed to help families care for children with complex medical needs at home, rather than in institutional settings. Specifically, the bill mandates that two of these new slots be reserved for children diagnosed with juvenile Tay-Sachs disease, a rare and fatal genetic disorder that affects the nervous system. If there are not two children with Tay-Sachs disease who qualify, these reserved slots can be allocated to children with other rare, life-threatening diseases. By increasing the number of available slots, the bill aims to provide more families with access to critical medical support and home care services for children with serious health conditions.

Health and Social Services

https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00801&which_year=2025