Bill > SR0025

This resolution declares May 2025 as Prader-Willi Syndrome Awareness Month in Illinois, highlighting the significance of this rare genetic disorder that affects approximately 1 in 15,000 births equally across all races and genders. The resolution emphasizes the complex challenges of Prader-Willi syndrome, including an extreme and uncontrollable appetite leading to potential morbid obesity, cognitive and learning disabilities, and behavioral difficulties that require constant lifelong supervision. By designating an awareness month, the resolution aims to increase public understanding of the syndrome, support early diagnosis and intervention, and encourage further research into treatments and potential cures. The resolution also recognizes that while recent advances like human growth hormone therapy have improved quality of life for affected individuals, many symptoms remain untreated, and increased research could not only benefit those with Prader-Willi syndrome but also contribute to broader understanding of public health issues like childhood obesity and mental health.

Health and Social Services

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=25&GAID=18&DocTypeID=SR&SessionID=114&GA=104