Bill > HCR10

This concurrent resolution recognizes February 28, 2025, as "Rare Disease Day" in Delaware, highlighting the significant challenges faced by individuals with rare diseases. The resolution provides context about rare diseases, noting that there are nearly 7,000 rare conditions affecting fewer than 200,000 Americans, with approximately 30 million Americans impacted overall. It emphasizes that while only about 500 rare diseases have approved treatments, patients often struggle with delayed diagnoses, difficulty finding medical experts, and limited access to treatments. The resolution specifically mentions examples like Lissencephaly and Ehlers-Danlos Syndrome to illustrate the complexity of rare diseases. It also acknowledges that Delaware became the 27th state to establish a Rare Disease Advisory Council in July 2023 and recognizes the National Organization for Rare Disorders' efforts to raise awareness through a nationwide observance. By designating this specific day, the resolution aims to draw attention to the challenges faced by rare disease patients and support ongoing research and advocacy efforts.