summary
Introduced
02/04/2025
02/04/2025
In Committee
03/21/2025
03/21/2025
Crossed Over
Passed
Dead
Introduced Session
104th General Assembly
Bill Summary
Amends the Genetic Information Privacy Act. Provides that an insurer may not seek information derived from genetic testing for use in connection with a policy of life insurance. Provides that an insurer may consider the results of genetic testing in connection with a policy of life insurance if the individual voluntarily submits the results and the results are favorable to the individual. Amends the Illinois Insurance Code. Provides that an insurer must comply with the provisions of the Genetic Information Privacy Act in connection with the amendment, delivery, issuance, or renewal of a life insurance policy; claims for or denial of coverage under a life insurance policy; or the determination of premiums or rates under a life insurance policy.
AI Summary
This bill amends the Genetic Information Privacy Act to expand protections for individuals' genetic information in the context of life insurance. Specifically, the bill prohibits insurers from seeking genetic testing information when considering a life insurance policy, with an important exception: if an individual voluntarily submits genetic test results that are favorable to them, the insurer may consider those results. The bill also reinforces existing privacy protections by preventing insurers from releasing genetic information to third parties without consent and prohibiting direct-to-consumer genetic testing companies from sharing genetic or personally identifiable information with health or life insurance companies without the consumer's written permission. The legislation aims to prevent genetic discrimination by ensuring that individuals are not disadvantaged by genetic information that could reveal potential health risks, while still allowing individuals to use favorable genetic test results to their benefit when applying for life insurance. The bill applies to various insurance-related activities, including policy eligibility, premium determination, and coverage renewals, with the goal of protecting individuals' genetic privacy and preventing potential discriminatory practices in the insurance industry.
Committee Categories
Business and Industry
Sponsors (1)
Last Action
Rule 19(a) / Re-referred to Rules Committee (on 03/21/2025)
bill text
bill summary
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bill summary
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bill summary
Document Type | Source Location |
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State Bill Page | https://www.ilga.gov/legislation/BillStatus.asp?DocNum=2534&GAID=18&DocTypeID=HB&SessionID=114&GA=104 |
BillText | https://www.ilga.gov/legislation/104/HB/10400HB2534.htm |
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