Bill > SB2261

This bill appropriates $1,600,000 from the General Revenue Fund to the Illinois Department of Public Health specifically to fund screenings for Duchenne muscular dystrophy (DMD) in newborn babies. Duchenne muscular dystrophy is a rare and severe genetic disorder that causes progressive muscle weakness and typically affects male children, causing significant health challenges that can be identified through early screening. The bill will provide funding to implement these specialized newborn screenings, which can help identify the condition early and potentially allow for earlier medical intervention and treatment planning. The appropriation will become effective on July 1, 2025, giving the Department of Public Health time to establish the screening program and allocate the necessary resources to implement comprehensive DMD testing for newborns across the state.

Budget and Finance

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=2261&GAID=18&DocTypeID=SB&SessionID=114&GA=104