Bill > A05123

This bill amends the New York Civil Rights Law to strengthen genetic privacy protections by mandating that genetic testing results can only be received by patients and their direct healthcare providers, while health insurance companies and life insurers are limited to receiving only a record confirming that a genetic test was performed. Specifically, the bill prohibits health and life insurers from requiring access to genetic testing results, using such results to make policy decisions, or taking any adverse actions against policyholders who do not provide their genetic test details. The legislation aims to prevent potential discrimination based on genetic information by ensuring that sensitive genetic data remains confidential and cannot be used by insurers to determine coverage, pricing, or eligibility. The new law will apply to insurance policies issued, renewed, modified, altered, or amended 90 days after it becomes law, providing immediate protection for individuals' genetic privacy and preventing insurers from using genetic information to make decisions about healthcare or life insurance coverage.

Government Affairs

https://www.nysenate.gov/legislation/bills/2025/A5123