Bill > HCR0022

This concurrent resolution recognizes February 28, 2025, as Rare Disease Day in Indiana, acknowledging that approximately 30 million Americans are affected by rare diseases. The resolution aims to raise awareness about the challenges faced by individuals with rare conditions and their families, emphasizing the importance of increased research, diagnostic efforts, and support. It encourages Indiana's citizens, healthcare professionals, and community organizations to observe the day by sharing information and supporting initiatives that improve the lives of those affected by rare diseases. Additionally, the resolution calls upon state agencies and stakeholders to continue fostering research and expanding resources for rare disease diagnosis, treatment, and care. The document highlights the critical role of healthcare professionals, researchers, advocacy groups, and policymakers in addressing rare diseases and ensuring affected individuals receive necessary support. Finally, the resolution directs the Principal Clerk of the House of Representatives to transmit copies of the resolution to State Representative Edward D. Clere for distribution.

https://iga.in.gov/legislative/2025/resolutions/house/concurrent/22/details