Bill > H0293

This bill modifies reporting requirements and data disclosure provisions for health-related registries in Vermont. Specifically, the bill changes the frequency of the Department of Health's health equity data reporting from annually to every three years, starting in 2028. The health equity analysis will continue to examine disparities across various demographic factors like race, ethnicity, language, sex, disability status, sexual orientation, gender identity, and socioeconomic status. The bill also updates disclosure requirements for the Cancer Registry and Amyotrophic Lateral Sclerosis (ALS) Registry, streamlining the process for sharing confidential information with researchers and other registries. For researchers, the bill updates the standard for obtaining approval from an academic human subjects committee to using an institutional review board or privacy board, aligning with current federal regulations (45 C.F.R. § 164.512). These changes aim to balance research needs with patient privacy protections and ensure that sensitive health data is shared responsibly. The bill is set to take effect on July 1, 2025.

Health and Social Services

https://legislature.vermont.gov/bill/status/2026/H.293