Bill > HR1518

This bill aims to improve rare kidney disease research, prevention, diagnosis, and treatment through several key provisions. It establishes Centers of Excellence on Rare Kidney Disease Research within the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), which will conduct research on rare kidney diseases, increase public awareness, and develop clinical research resources. The bill authorizes $6 million annually from 2026-2030 for these centers. Additionally, it mandates a comprehensive study by the Secretary of Health and Human Services to examine testing, preventative care, and treatment strategies for rare kidney diseases, including reviewing the impact of routine urinalysis, genetic testing, and barriers to diagnosis. The bill also focuses on enhancing provider education by modifying primary care training and nephrology fellowship programs to improve knowledge and care for populations disproportionately affected by rare kidney diseases. Furthermore, it requires the Secretary to conduct experiments to evaluate methods for treating rare kidney diseases with the goal of delaying or eliminating the need for dialysis and transplant, and to develop strategies for increasing public awareness. The legislation emphasizes addressing disparities in kidney disease diagnosis and treatment, particularly among racial and ethnic minorities, and aims to support research and education to improve patient outcomes.

Business and Industry

https://www.congress.gov/bill/119th-congress/house-bill/1518/all-info