Bill > H1089

This bill amends Florida's existing newborn screening law to require screening for Duchenne muscular dystrophy (DMD), a rare and serious genetic disorder that causes progressive muscle weakness, starting January 1, 2027, but only if the legislature provides appropriate funding. The bill builds upon existing requirements for newborn screenings, which currently mandate that every newborn have a blood specimen collected within one week of birth and be tested for conditions on the federal Recommended Uniform Screening Panel. The Department of Health must first consult with the Genetics and Newborn Screening Advisory Council before adding new screening requirements, and the department is expected to expand statewide screening within 18 months after receiving a council recommendation, provided an FDA-approved or alternative test is available. The bill specifically adds Duchenne muscular dystrophy as a condition to be screened, contingent on legislative appropriation, and will take effect on July 1, 2025. This change aims to enable earlier detection and potential intervention for this serious genetic disorder that predominantly affects male children and can lead to significant mobility and health challenges.

Budget and Finance, Health and Social Services

Health & Human Services Committee (H), Health Care Budget Subcommittee (H)

https://www.flsenate.gov/Session/Bill/2025/1089