Bill > SR8622

This resolution recognizes the significant challenges faced by individuals and families affected by rare diseases in the United States and specifically in Washington state. The resolution highlights that there are nearly 7,000 rare diseases (defined as conditions affecting fewer than 200,000 Americans), which collectively impact 25-30 million Americans, including 750,000 Washingtonians. While the Food and Drug Administration has approved drugs for over 880 rare disease indications, millions of patients still lack approved treatments. The resolution emphasizes the difficulties patients encounter, such as delayed diagnoses, challenges finding medical experts, and limited access to treatments. It also acknowledges the Orphan Drug Act's role in encouraging rare disease research and notes Washington's prominence in rare disease research through its leading academic institutions, medical centers, and pharmaceutical companies. Ultimately, the resolution commends efforts to find cures for rare diseases, encourages recognition of patients' struggles, and calls for compassionate care and continued scientific discovery to support those affected by these challenging conditions.

https://app.leg.wa.gov/billsummary?BillNumber=8622&Year=2025&Initiative=false