Bill > HB2399

This bill establishes an advance universal newborn screening program administered by the Kansas Secretary of Health and Environment, expanding and modernizing the state's approach to early detection of medical conditions in newborns. The bill allows the secretary to determine and identify which specific medical conditions will be included in newborn screening tests, moving away from a fixed list of specific diseases to a more flexible approach based on recommended screening guidelines. The legislation provides a comprehensive framework for screening, including educational programs for medical professionals and the public, free initial laboratory screening tests, a follow-up program to monitor infants with abnormal results, and a registry to track cases. The bill also establishes provisions for reimbursing treatment products for diagnosed conditions, with the level of reimbursement varying based on the family's income level (ranging from 50% to 100% of product costs). Additionally, the bill creates a Kansas Newborn Screening Fund in the state treasury, which can receive up to $5,000,000 annually to support the screening program. The legislation aims to support early diagnosis, treatment, and prevention of potential disabilities or health complications in newborns by providing a more adaptive and supportive screening system.

Health and Social Services

Federal and State Affairs (House)

https://kslegislature.gov/li/b2025_26/measures/hb2399/