Bill

Bill > H1547


FL H1547

FL H1547
Pub. Rec./Parkinson's Disease Research Program Registry


summary

Introduced
02/28/2025
In Committee
03/05/2025
Crossed Over
Passed
Dead
06/16/2025

Introduced Session

2025 Regular Session

Bill Summary

An act relating to public records; amending s. 381.992, F.S.; providing a public records exemption for information held in the Parkinson's Disease Research Program Registry which provides background information on individuals served by the Parkinson's Disease Research Program; providing for future legislative review and repeal of the exemption; providing a statement of public necessity; providing a contingent effective date.

AI Summary

This bill creates a public records exemption for the Parkinson's Disease Research Program Registry, protecting the personal and health-related information of individuals participating in the program. Specifically, the bill makes all information in the registry that could identify individuals confidential and exempt from public disclosure requirements under Florida's public records laws. The exemption allows the information to be shared with other government entities for official purposes, but prevents unauthorized access that could potentially invade personal privacy or be used for harassment. The Legislature justifies this exemption by arguing that publicly available personal health information could compromise individuals' privacy, hinder the registry's administration, and expose participants to potential solicitation or harassment. The exemption will automatically expire on October 2, 2030, unless the Legislature specifically reviews and reenacts it through the Open Government Sunset Review Act. The bill's effective date is contingent upon the passage of related legislation (HB 1545) during the same legislative session.

Committee Categories

Health and Social Services

Sponsors (1)

Last Action

Died in Health Professions & Programs Subcommittee, companion bill(s) passed, see CS/CS/HB 1545 (Ch. 2025-188) (on 06/16/2025)

bill text


bill summary

Loading...

bill summary

Loading...
Loading...