Bill > S06029

This bill requires the Health Equity Council to issue mandatory recommendations to the Commissioner of Health specifically related to sickle cell disease (SCD), a serious genetic blood disorder that predominantly affects people of African descent. The bill expands the council's existing responsibilities by mandating that they develop comprehensive strategies including: establishing a statewide public education campaign about SCD screening and detection; providing grants to approved organizations; compiling and disseminating SCD data; developing healthcare professional education programs; creating regional sickle cell centers offering integrated care (including pain management, mental health services, and genetic counseling); implementing workforce development in primary and specialty SCD care; and supporting long-term surveillance of SCD complications and health trends. Furthermore, the bill requires the Commissioner of Health to consider, adhere to, and act upon all recommendations and mandates issued by the Health Equity Council. This legislation aims to improve SCD treatment, patient outcomes, and healthcare infrastructure by ensuring a more systematic and comprehensive approach to managing the disease.

Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/S6029