Bill > SCR33

This joint resolution designates May 23, 2025, as GM1 Gangliosidosis Awareness Day in California to draw attention to a rare inherited lysosomal disorder that causes neurodegeneration and progressive disability. The resolution highlights that GM1 Gangliosidosis is an extremely rare condition occurring in only one in every 100,000 to 200,000 live births, and is often underdiagnosed or misdiagnosed. By establishing this awareness day, the California Legislature aims to increase public understanding of the disease, emphasize the importance of early diagnosis for managing clinical complications and accessing genetic counseling, and provide support for affected individuals and families. The resolution also underscores the significant challenges faced by children, adolescents, and adults with this condition, which leads to substantial physical and developmental impairments. As a final procedural step, the resolution directs the Secretary of the Senate to distribute copies of the document to the author for appropriate dissemination.

https://leginfo.legislature.ca.gov/faces/billStatusClient.xhtml?bill_id=202520260SCR33