Bill > S06074

This bill establishes a comprehensive sickle cell disease education and mapping program administered by the New York State Commissioner of Health. The program aims to promote screening and detection of sickle cell disease, a genetic blood disorder primarily affecting people of African descent, by creating a statewide public education and outreach campaign. The program will involve approved organizations such as hospitals, health maintenance organizations, county or city health departments, and specialized sickle cell disease organizations. Key activities include conducting community education about sickle cell disease, providing information on screening services and insurance coverage, compiling and publicly sharing data about sickle cell disease occurrence across different locations in the state, consulting with local organizations to improve screening and referral services, and generating data to help develop healthcare education programs for diagnosing and treating the disease. The commissioner is authorized to create and promulgate rules and regulations for this program, with the ultimate goal of increasing public awareness, improving detection, and supporting individuals affected by sickle cell disease.

Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/S6074