Bill > J00461

This resolution memorializes Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in New York, highlighting a rare genetic kidney disease that affects less than 200,000 people in the United States. Alport Syndrome is characterized by progressive kidney disease, inner ear abnormalities, and eye complications, with four genetic types (X-linked, autosomal recessive, autosomal dominant, and digenic) that can cause varying disease progression. The resolution notes that the syndrome was first described in 1927 by Dr. Cecil Alport and is marked by early-life blood in the urine and progressive kidney function decline, with currently no FDA-approved treatment to stop renal function deterioration. By seeking an official awareness month, the resolution aims to increase public understanding of the syndrome's causes, symptoms, diagnoses, and potential treatments, and to encourage citizens to learn more about this serious genetic condition. The document requests that an officially engrossed copy of the resolution be transmitted to Governor Hochul to formally recognize and support Alport Syndrome awareness efforts.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J461