Bill > HR0173

This resolution declares May 2025 as Prader-Willi Syndrome Awareness Month in Illinois, focusing on a rare genetic disorder that affects approximately 1 in 15,000 births and causes life-threatening obesity. The resolution highlights the complex nature of Prader-Willi syndrome, which impacts males and females equally across all races and ethnicities, and is characterized by an extreme, insatiable appetite, cognitive and learning disabilities, and behavioral challenges that require constant lifelong supervision. By designating an awareness month, the resolution aims to increase public understanding of the syndrome, support research efforts to improve treatments and potentially find a cure, and recognize the importance of early diagnosis in helping families access necessary interventions and support. The resolution also notes that while recent treatments like human growth hormone have improved quality of life for some individuals, many challenging symptoms remain untreated, and increased research could not only benefit those with Prader-Willi syndrome but also contribute to broader understanding of public health issues like childhood obesity and mental health.

Health and Social Services

https://www.ilga.gov/legislation/BillStatus.asp?DocNum=173&GAID=18&DocTypeID=HR&SessionID=114&GA=104