Bill > S06178

This bill directs the New York State Commissioner of Health to conduct a comprehensive sickle cell disparity study, which will examine treatment accessibility and affordability for individuals with sickle cell disease compared to patients with other chronic conditions like lupus, cancer, diabetes, and heart disease. The study aims to identify potential disparities in healthcare access and treatment for sickle cell patients. The commissioner is required to complete the study within 18 months of the bill's effective date and must publicly share the results by posting them on the department of health's open health data website. The legislation is temporary, with the bill taking effect immediately and automatically expiring and being repealed two years after its effective date. This study is significant because sickle cell disease disproportionately affects African Americans, and the research could help highlight and potentially address systemic healthcare inequities.

Budget and Finance, Health and Social Services

https://www.nysenate.gov/legislation/bills/2025/S6178