Bill > J00464

This resolution aims to memorialize Governor Kathy Hochul to officially proclaim April 2025 as TAR Syndrome Awareness Month in New York State, focusing on raising awareness about Thrombocytopenia-absent radius (TAR) syndrome, a rare genetic condition characterized by the absence of radius bones in the forearms and low platelet levels. The resolution explains that TAR syndrome can cause easy bruising, frequent nosebleeds, and potential life-threatening bleeding, with physical symptoms that vary among individuals and may include skeletal abnormalities, heart and kidney defects, and digestive challenges. While highlighting that intellectual development is typically normal and long-term prognosis is positive for children who survive the first few years, the resolution seeks to educate the public about the syndrome, support affected individuals and their families, and promote continued medical research. Additionally, the resolution recognizes the financial, physical, and psychological impact of the condition and honors the advocates and healthcare providers working to address TAR syndrome. The document will be transmitted to Governor Hochul as an official request to designate the awareness month.

Budget and Finance

https://www.nysenate.gov/legislation/bills/2025/J464