Bill > S788

This bill establishes a comprehensive approach to improving sickle cell disease (SCD) care in Massachusetts through multiple key initiatives. It creates a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, comprising representatives from medical professionals, patient advocacy groups, government agencies, and people directly impacted by the disease. The committee will establish partnerships, develop educational materials, identify funding sources, and oversee the development of a statewide network of support for individuals with SCD. The bill also establishes a sickle cell disease detection and education program to promote screening, especially among underserved populations, and provide counseling and referral services. Additionally, the bill mandates the creation of a comprehensive SCD registry to collect detailed epidemiological data, and requires Medicaid managed care organizations to develop a quality strategy for SCD care, including improved identification of patients, provider training, care coordination, and performance measures. The legislation aims to address healthcare disparities, improve access to care, and provide comprehensive support for individuals with SCD across various life stages, from newborn screening through adult care transitions.

Budget and Finance, Business and Industry, Health and Social Services

https://malegislature.gov/Bills/194/S788