Bill
Bill > A5488
NJ A5488
NJ A5488Makes various revisions to law pertaining to electronic medical records and recording certain minor patients' demographic information.
summary
Introduced
03/20/2025
03/20/2025
In Committee
03/20/2025
03/20/2025
Crossed Over
Passed
Dead
01/12/2026
01/12/2026
Introduced Session
2024-2025 Regular Session
Bill Summary
This bill revises certain laws pertaining to electronic medical records and the recording of patients' demographic information. It is the sponsor's intent that this bill will prohibit general acute care hospitals and clinical laboratories from collecting, or requesting to collect, data concerning sexual orientation or gender identity from minor patients, unless the minor patient's parent or guardian voluntarily provides such information. If such information is voluntarily provided by a parent or guardian, the provisions of the bill should not be construed as prohibiting a health care provider from discussing and recording the information, as necessary for the provision of health care services. Specifically, this bill provides that a general acute care hospital or clinical laboratory will not collect, or request to collect, data concerning patient sexual orientation or gender identity for a patient who is a minor under the age of 18, unless the patient or the patient's parent or guardian voluntarily provides the data. The bill also revises current law concerning electronic medical records or laboratory information management systems to provide that, in the case of a minor patient under the age of 18, certain electronic medical records or laboratory information management systems will be configured in a manner that does not require a selection for the patient's gender identity and sexual orientation in order to save or store the patient's demographic information. Under current law, a clinical laboratory is required to electronically record the race, ethnicity, sexual orientation, and gender identity of each patient who presents with a non-electronic order for testing at a clinical laboratory patient service center. Current law also requires that certain electronic medical records or laboratory information management systems used by acute care hospitals and licensed clinical laboratories are to be configured in a manner that prevents an authorized user from saving or storing a patient's demographic information into the electronic medical records or laboratory information management systems unless a selection for a patient's gender identity, sexual orientation, and racial and ethnic information is recorded.
AI Summary
This bill makes significant revisions to laws concerning electronic medical records and the collection of demographic information, specifically focusing on protecting minor patients' privacy regarding sexual orientation and gender identity. The bill requires general acute care hospitals and clinical laboratories to implement a cultural competency training program for staff who collect patient demographic information, and introduces key protections for patients under 18 years old. Specifically, hospitals and laboratories are now prohibited from collecting or requesting sexual orientation or gender identity data from minor patients unless such information is voluntarily provided by the patient or their parent/guardian, and this data can only be used for medical diagnosis and treatment. The bill also mandates that electronic medical records and laboratory information management systems be configured so that for minor patients, gender identity and sexual orientation selections are not required to save or store demographic information. Additionally, the legislation maintains existing requirements for staff training on collecting demographic data sensitively, including topics like appropriate terminology, understanding the relationship between patient health and such data, and creating an inclusive environment. The bill allows the Commissioner of Health to impose corrective actions for non-compliance and establishes potential civil penalties for vendors of electronic medical record systems that fail to meet the new requirements.
Committee Categories
Health and Social Services
Sponsors (2)
Last Action
Introduced, Referred to Assembly Health Committee (on 03/20/2025)
Official Document
bill text
bill summary
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bill summary
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bill summary
| Document Type | Source Location |
|---|---|
| State Bill Page | https://www.njleg.state.nj.us/bill-search/2024/A5488 |
| BillText | https://pub.njleg.gov/Bills/2024/A5500/5488_I1.HTM |
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