Bill > K00212

This resolution memorializes Governor Kathy Hochul to designate March 15, 2025, as Stiff Person Syndrome (SPS) Awareness Day in New York State, highlighting the importance of raising public understanding about this rare neurological disorder. The resolution provides detailed context about SPS, explaining that it is a condition causing involuntary muscle contractions and spasms that can affect various body parts, potentially causing painful and unpredictable movements. It notes that SPS is extremely rare, affecting approximately one to two individuals per million, and occurs across all ages and backgrounds. The resolution outlines that the precise cause of SPS is unknown, but researchers believe it involves antibodies blocking an enzyme that helps produce a neurotransmitter called GABA, which normally helps reduce nerve signals. While emphasizing that no cure currently exists, the resolution stresses the importance of symptom management through specialist care, therapies, and medications. By requesting an official awareness day, the legislative body aims to increase public knowledge, promote research, and support individuals affected by this challenging neurological condition.

https://www.nysenate.gov/legislation/bills/2025/K212