Bill > HR137

This resolution recognizes May 17, 2025, as "World Neurofibromatosis Awareness Day" in Pennsylvania, highlighting the importance of raising awareness about this rare genetic condition that affects approximately 1 in 2,000 births worldwide. The resolution provides detailed information about neurofibromatosis, explaining that it is a disorder causing tumors to grow on nerves throughout the body and potentially impacting the brain, cardiovascular system, bones, and skin. It describes three types of the condition (neurofibromatosis type 1, type 2, and schwannomatosis), noting their varying prevalence and symptoms, and emphasizes that the disorder can lead to serious health complications such as blindness, deafness, bone abnormalities, and learning disabilities. The resolution also acknowledges the Children's Tumor Foundation's efforts in promoting medical research, supporting patients and families, and working towards finding effective treatments and potentially a cure. By designating this specific day, the resolution aims to increase public understanding of neurofibromatosis, encourage early diagnosis, and support ongoing research and patient care.

Health and Social Services

https://www.legis.state.pa.us/cfdocs/billinfo/bill_history.cfm?syear=2025&sind=0&body=H&type=R&bn=137